A little about me

Saturday, November 21, 2015

Tired of being tired Pt 2

Can I totally melt down yet?

After my previous post I received my Western blot testing...

I'm positive for Lyme Disease. I had the results last Saturday and I have to say I felt elated and even gave a pretty excited posting on FB. Not that I am happy with the thought of how devastating this diagnosis can be, but because I narrowed down the root cause of my health issues after many years.

I would like to say that it's still my ex's fault but it's not. More than likely it was a tick, spider, mite or mosquito with Lyme. I can recall 3 instances when I received something funky. I never found a tick on my person. They appeared as a mosquito bite and the next subsequent days they looked like a nasty bug bite. I did go to the ER for the first one but was told it was more than likely a spider bite and if I worsened to have me return to the ER. Well, it itched and looked nasty for about a week and went away.

Not thinking anything of it, fast forward to the last few years and lots of aches and pains later, here I am.

Now what? I'm reading all I can on Lyme's and have a few dear Friends that are Lyme Warriors that have given me some great info for this journey. Terry and I went to the office that provided the test results for protocol. I will be on antibiotics for 6 months. WHEW!

Lesson learned to be persistent with medical professionals if something is not right. I did also return for a more through test on my Thyroid and will complete my Adrenal testing as well and should have the results next month on that.

I ended up going back to work on the 9th of this month. I felt terrible on Monday, excellent on Tuesday and Wednesday was a horrible day! I could barely walk into the building, I shuffled in, kind of like Tim Conway does as the Old Man, except not as funny. I couldn't open up the door to the office and started crying while waiting for co-worker that took pity on my I believe to open the door.
I walked to my desk just crying, I couldn't take off my coat, I couldn't take my Quart jar (holds my water) out of my bag, my Supervisor helped me sit down. I didn't have the strength to pull and push my chair to sit down. It took me 20 mins to log into my computer. I couldn't get my fingers to work! I was so flustered and upset.

Part of me was upset because Terry didn't think I could make 3 days and here I was on the third day sitting at my desk blubbering like a baby. Terry had been staying in the area so I texted him to pick me up. I was hoping I could start again on Thursday but there was no change. Thursday night I chatted with Terry and a few good friends that encouraged me to do what felt right, my health comes first!

I felt like a failure. I was disappointed at myself. My Warrior spirit felt like it's weaning. I still believe God is with me, just like so many other low or concerning times in my life.I'm not throwing in the towel, just venting.

Of course, I also do not have the Lyme Disease that makes you lose weight. SIGH! Just making light of this, no seriousness intended.  It has messed with my Thyroid so I have the reverse. Though with watching what I eat, see my previous post-Tired of being tired Pt 1.

I think about so many others that are struggling with worse health issues and count my blessings. Since I'm not working I have to figure out how to creatively make ends meet.

Anyone interested in a Survivor of abuse, turned health activist, Antique/vintage dealer, Doula, Reflexologist, herbalist and hobby farmer? Happy to telecommute!

This journey has taught me to appreciate everyday! My past and where I am now is so much better. I have a sense of peace, the normalcy I yearned for, though there is still some sort of drama here and there that is unrelated. And on a positive note I now have a growing collection of walking sticks and canes to help me with my balance issues on rough days!

Please see my previous post labels: Safety plan, Leaving your abuser, Positive Affirmations, Gaslighter or maybe you want to know more about my journey, see About me. My journey started the moment I left my ex.

I know God is in control! Even when everything seems like it is spinning out of hand. The Lord knows every hair on your head, where you have been and where you are going. If you need to talk, need to pray or want to find out more about the Lord, please feel free to email me, leave me a comment or find me as "Melinda Campos Kunst" on FB.

On side note, I found the nerve to color my hair PINK!
My Hubby cut it SHORT so I can wear it as a "Faux hawk"! I loved it! It lasted about a week before I decided I was ready to go back to my normal color.

I had received more then a handful of comments of "Why did you do that?!" and raised more than a few eyebrows at church. Two things:

1) I always wanted pink hair, even before it was popular to do funky colors with your hair.

2) It felt empowering to cut and color my hair how "I" wanted it to be. Terry was fine with the color as long as I was happy with it, he would be happy.With my ex even my hair had to be looking perfect. He hated short hair! It's so super easy to deal with especially right now, when I am lucky if I feel like getting dressed everyday.Strange enough, I felt very empowered by my rockin spunky new look!  I'll be growing out my lovely locks so I can actually do some neato hair styles I found on Pinterest. YES, you will find me on there! One of my vices to get lost on!

I pray that your path finds you with much joy, happiness, safety and love. The path is slow, rocky and sometimes seems like too much, but it's worth it in the end. Don't give up! I'm rooting for you! I'll follow up with more info on my health journey as it comes!

God bless and BIG hugs!

Wednesday, November 4, 2015

Tired of being tired Pt 1

 It's been awhile since I have posted. Several things going on with me, physically. I also think I need to take more of a drastic direction of my blog than just sharing my past. I have tried to incorporate what's going on in my life here and there that is not related to my abuser in order to shine a ray of sunshine on what can be a dark subject.

As I shared before I wish for normalcy. Like a child craving a sweet at the checkout counter of a store. 

I crave stability. 
I crave happiness in everyday life and simple things. 
I crave unconditional love. 

I am blessed to receive all of these things now and count my life at this time surreal from my past. Which brings me to why I have been MIA for a bit. 

Now thinking back I can see patterns of physical issues but I was so consumed with fear and panic that I didn't put things together. And of course I wasn't able to really worry about how I felt at that time. I know sounds weird, but when I was with my ex husband, anytime that took away from my abuser was a no-no! He believed that any sickness or injuries were my fault or made up. 

Enough about him! Flash forward to present. 

So over the past year I noticed an increase in aches and pains. I attributed alot of it to getting older (I'll be 45 this month) or maybe it is my high stress job as a Customer Service agent for a nationwide trash company. It is not uncommon for workers, myself included, to cry sometime during the work hours from a disgruntled customer unhappy with billing, trash pick up, or why the sun is not out. 

These issues started to worry me as I noticed my feet started to feel tingly and felt numb. I blew it off to the fact I was sitting all day. And I was so exhausted, even after sleeping, also my sleep was off. I was maybe getting 4 hours of sleep a night if I was lucky. Of course I would fall asleep on the couch at 7 pm! I felt old! Despite my working out, P90, TurboJam, TurboFire, Brazilian Butt lifting 5 times a week (Not all at the same time) I was gaining weight! 15 pounds in a month at one point and time. I was watching what I ate somewhat. I admit I was stress eating mostly at work and eating snacks and desserts after 8 pm, after my nap. 

Slowly that  annoying tingly-numb feeling crept up my legs. The next month my arms and hands had the same feeling. I was really getting worried. But I did continue to brush it off as how I was sitting at my desk. My back was killing me more than normal. Which again I blew off. I invested in a Office ball chair, of which I loved bouncing on! I figure I could perhaps get rid of the weird feeling in my arms and legs this way. During this time I was having more Anxiety attacks, muscle twitches and my speech was becoming impaired. I felt like I was losing it. I cried to Terry that maybe I was getting Parkinson's or Alzheimer's! I was forgetting things, my headaches that plagued me for years were getting so intense I had to leave work.

I had Vertigo on and off for 10+ years that would come on if I was tired or under great stress. It would go away after a few days to a week. Suddenly in July no matter what I did I couldn't get it to leave. It no longer was limited to when I was just tired. I was having intense spells that happened when I when I was sitting, driving and just walking. I broke down and scheduled an appointment to a Chiropractor. A month later, I was still experiencing issues and they worsened! 

The Chiropractor advised that I had the signs of Fibromyalgia and possibly MS. Hearing this I needed to jump into going to a medical doctor in August. I left work early at work in a panic. I felt anxiety but something else. I felt hot, I was so dizzy and felt faint! I shared with my co-workers that something wasn't right. I had Terry pick me up from work and we drove to Urgent Aid. I didn't know what was wrong but something was just not right.

I was evaluated and sent away to be treated as a inner ear infection. I was unhappy with the diagnosis and told I should go to the ER if symptoms persist. 2 days later I went to the ER. I was once again evaluated and told about a probability of an inner ear infection and sent on my way. 

Feeling puzzled and somewhat annoyed I was able to get to doctors. At the appointment I rattled on about 30+ other things I have noticed over the past few weeks. He scheduled MRI's, blood work, sleep studies, stress tests and more. He wanted to get a baseline since he never saw me before. I left my appointment upset. During the waiting period for my tests I took it upon myself to read and devour articles and websites on anything that sounded like my symptoms. I came up with a few things to ask the doctor about at our next visit. 

Upon the next visit I was informed I was borderline Hashimoto and further tests needed. MS, Lyme's Disease and Lupus was ruled out. YEA! I still had no answers. I ask if he performed the Western Blot and all Thyroid levels. He said he did blood tests and I was fine. HUMPH!  I had shared I had PTSD at our first visit this time the Doctor suggested that perhaps I was "Creating my symptoms". He may have to refer me to a psychoanalyst if nothing is found.

We left the appointment frustrated. 

I was tearful and upset. 

I know it's not in my head!

A friend of mine recommended I change my diet- No Dairy, Whites, or Gluten. She had experienced similar issues a year before. She provided some other great pearls of wisdom and I felt like I finally was not losing my mind. I also met someone else that advised of a place I could get a blood test for Lyme disease since we live in a location where this is prevalent. So I did! I should get the results back in a month, at this present time I should be hearing from them soon with the results.

Since I started this journey I have been depressed and annoyed that I haven't had an real answers. I found my blood results with a Hashi group I joined and bounced them off a kindred spirit. I wish she lived closer! She gave me a pep talk and pointed me in the right direction to ask my doctor about my test results. I had an appointment on Tuesday and before I went I prayed for God to intercede with my visit and  I ended up seeing the Dr's Associate! He was informative, attentive and listened to my concerns. 

He verified it looks like I have Hashimoto's, also Celiac's Disease and he believes I have Adrenal Fatigue! 
WHOA! I had to thank the Lord for this blessing.

I requested further testing on my Thyroid, brain and vitamins. He sent us to Vyto's Pharmacy (A Compound Pharmacy. In my opinion it's too bad we don't have more of these anymore!) for a Cortisol test.Everyone was informative! it so happens the Pharmacist suffered from Thyroid issues, so she was able to provide a lot of information. 

So armed with new vitamins to try, my saliva test and a positive visit I feel better that something positive will come out of this! 

I have been off work this whole time but my FMLA is up this week so next week I head back to work. Terry is betting I make it 3 days. I figure I will try to see how far I can go without losing my mind or physically breakdown. So say a prayer for me!
How could this all come to a head? For many years I have had a great deal of stress in my life which sent my Adrenals to work overtime. As the years went by of burning the midnight oil and chaotic situations my body has decided it's fried. I felt I needed to share. 

Many Victims and Survivors of abuse have various ailments that are worse or hidden. Abuse can do a real number to a person. The effects can be felt years later after the abuse is over. In some, physical issues go away after leaving and maybe replaced with Adrenal Fatigue or Thyroid issues. So Dear blog reader, I implore you to make sure you make a checklist for your health.  Keep a journal of your whole body, mind and spirit. Get yourself checked and don't wait like I did! 

Wherever your journey is taking you be safe!

God bless!